Director

Full Time Flex position in Greenwich, CT
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Job Description

The Foundation is a private grant-making 501c3/509a that funds high risk, high reward scientific and clinical research (venture philanthropy) dedicated to the diagnosis and treatment of Lipedema. Lipedema is a female condition where irregular fat builds up in the arms and legs, sometimes with pain and swelling. It is widespread but not well-known. The foundation is based in Greenwich, CT.

 

The Foundation has funded 25 grants with a variety of institutions, locales, and PI experience level. They intentionally seek truly collaborative researchers because of the early stage of research. The Foundation maintains its focus by outsourcing non-core functions (marketing/SEO, legal, accounting, IT, software) and maintaining an intentionally narrow scope. Current management includes the Founder in CT, and the Chief Science Officer in MD, with a support staff of 3. The Foundation has offices in Greenwich, CT, near Bethesda, MD, and has office space available in New York, NY. This is a full-time position with benefits and flexibility.

 

About the Role:

The Director will work closely with the Founder and the team to design and execute the Foundation’s strategy:

  • Grow awareness among multiple stakeholder groups: researchers, surgeons, doctors, therapists, and the general public
  • Build network of collaborative scientific investigators, clinicians and educators; build out boards
  • Lay groundwork for upcoming complex, large-scale research projects
  • Source ad hoc venture capital projects
  • Enhance the Lipedema research space: cultivate interest, lower barriers to entry, ease communication and accelerate efficiency

Ideal candidates will have experience and proven track record in:

  • Disease-focused private foundations or public non-profits, or related space 
  • Startups
  • Executive-level strategic planning and execution
  • Team building and personnel management; outsourcing
  • Software, data and technology
  • Breadth and depth of managing day-to-day work across all functions
  • Scientific proposal review, grant assessment, & contract negotiation
  • Securing Personal Health Information (PHI/PII)
  • Marketing
  • Scientific proposal review, grant assessment, and contract negotiation

 Education:

  • PhD or advanced degree in biology, chemistry, bio-engineering or related field, and
  • MBA or MPH

Characteristics:

  • Excels in big-picture strategy and driving the details to implement it
  • Tenacious and forward-thinking
  • Comfortable representing the Foundation publicly
  • Able to transition seamlessly between various colleagues: scientists, patients, physicians, staff, and outsourced teams
  • Values transparency and collaboration
  • Ability to travel ~25-50%

2018-2019 Initiatives Include:

  • Pilot of complex research program
  • Host scientific retreat
  • Launch patient registry
  • Develop awareness campaign
  • Assess data from, and collaborate with, 25 funded projects
  • Utilize retreat outcomes and project data to refine and implement the research road map